Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study

Area of Science:

• Genetics
• Health Psychology
• Information Science

Background:

• Genetic testing for cancer predisposition offers valuable insights but necessitates comprehensive patient understanding.
• Information-seeking behavior is a critical component of the genetic counseling process.

Purpose of the Study:

• To assess the information needs and sources of individuals undergoing genetic testing for cancer predisposition.
• To identify motivators and barriers influencing information-seeking behavior before and after testing.

Main Methods:

• Qualitative analysis of semi-structured interviews with individuals seeking genetic counseling in Switzerland.
• Application of Wilson's model of information behavior as a theoretical framework.

Main Results:

• Four key themes emerged: attitudes and emotions, knowledge, social environment, and demographic factors, influencing information-seeking.
• Specific information needs and sources utilized by participants were identified.
• Information gaps were noted, particularly outside the clinical genetic counseling setting.

Conclusions:

• An empirical approach enhances healthcare professionals' understanding of patient information-seeking behaviors and preferences.
• Proactive assistance from healthcare professionals is vital for guiding patients toward trustworthy and accessible genetic information.
• Education on predictive genetic testing is essential for all healthcare professionals.