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Development and initial validation of the polyhandicap severity scale.

M-C Rousseau1, K Baumstarck2, I Hamouda2

  • 1Fédération des hôpitaux de polyhandicap et multihandicap hôpital San Salvadour, Assistance publique-Hôpitaux de Paris, Paris, France; EA 3279, self-perceived health assessment research unit, school of medicine, Aix-Marseille université, 27, boulevard Jean-Moulin, 13385 Marseille cedex 05, France.

Revue Neurologique
|October 18, 2020
PubMed
Summary
This summary is machine-generated.

The Polyhandicap Severity Scale (PSS) is a new, validated tool to assess the health status of polyhandicapped individuals. It offers a reliable measure for healthcare providers and decision-makers.

Keywords:
Health statusPolyhandicapScaleSeverityValidation

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Area of Science:

  • Medical assessment tools
  • Disability studies
  • Healthcare quality improvement

Background:

  • Assessing the health status of polyhandicapped individuals is complex.
  • Existing tools may not fully capture the global severity of polyhandicap.
  • Expert-driven assessment is crucial for developing effective tools.

Purpose of the Study:

  • To introduce and validate the Polyhandicap Severity Scale (PSS).
  • To provide a reliable and valid measure for polyhandicapped persons' health severity.
  • To aid healthcare workers and decision-makers in quantifying health status.

Main Methods:

  • The PSS was developed through item selection and validation.
  • The scale includes 10 items on abilities and 17 on comorbidities/impairments.
  • Validation involved assessing external validity, reproducibility, responsiveness, and acceptability in a cohort of 875 patients.

Main Results:

  • The PSS demonstrated satisfactory reproducibility and responsiveness.
  • Higher scores correlated with older age, progressive etiology, increased medical support, and greater dependency.
  • The scale requires an average of 22 minutes to complete.

Conclusions:

  • The Polyhandicap Severity Scale (PSS) is the first reliable and valid measure for assessing health severity in polyhandicapped individuals.
  • The PSS is essential for both clinicians and health policy developers.
  • This tool supports better quantification and management of polyhandicap.