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An implementation model for managing cloud-based longitudinal care plans for children with medical complexity.
Grace Wang1, Julia Wignall1, Dylan Kinard1
1Center for Child Health, Behavior & Development, Seattle Children's Research Institute, Seattle, Washington, USA.
Journal of the American Medical Informatics Association : JAMIA
|November 5, 2020
Summary
Cloud-based longitudinal care plans (LCPs) for children with medical complexity (CMC) need a team approach for effective management. This model optimizes care coordination and information sharing between families and providers.
Area of Science:
- Health Informatics
- Pediatric Healthcare
- Implementation Science
Background:
- Children with medical complexity (CMC) require coordinated care plans.
- Managing longitudinal care plans (LCPs) presents challenges for families and providers.
- Cloud-based solutions offer potential for improved LCP management.
Purpose of the Study:
- To iteratively refine an implementation model for cloud-based longitudinal care plans (LCPs) for children with medical complexity (CMC).
- To identify strategies for mitigating barriers in LCP management processes.
- To develop a model leveraging cloud computing for collaborative care.
Main Methods:
- Iterative 1-on-1 design sessions with caregivers and providers.
- Role-specific scenario walkthroughs using a cloud-based prototype.
- Analysis of audio recordings to identify and address management barriers.
Main Results:
- A team-based ownership model for LCPs is essential, including caregivers, designated clinicians, and care coordinators.
- Permission settings require universal emergency access, team-level options, and caregiver editing restrictions.
- Notifications for LCP review/editing are crucial before/after visits and encounters.
- Interoperability through data field alignment with electronic health records mitigates double documentation.
Conclusions:
- The developed model leverages HIPAA-compliant cloud computing for co-managing CMC health information.
- Implementing these strategies can enhance team-based care across various healthcare settings.
- This approach supports families and providers in navigating complex care needs.
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