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Continue the Conversation: A Complex Care Pediatrician's Perspective on Improving Healthcare Transitions for
Jodi K Wenger1, Madeline Niemann2
1Department of pediatrics, Boston University School of Medicine, Boston, MA.
Insights
Preparing youth with special healthcare needs for the transition to adult care is crucial. Improved coordination between primary care and specialists can prevent treatment gaps and enhance health outcomes for those with neurological disorders.
Area of Science:
- Pediatric Healthcare
- Transition of Care
- Neurological Disorders
Background:
- Inadequate preparation for transitioning youth with special healthcare needs (SHCN) to adult care causes treatment gaps and poor health outcomes.
- Effective coordination between primary care and specialists is vital for improving the transition process for youth with neurological disorders.
Purpose of the Study:
- To review the transition process from a pediatrician's viewpoint.
- To identify common obstacles and address the specific needs of youth with intellectual disabilities.
- To discuss emerging transition strategies and relevant guidelines.
Main Methods:
- Literature review focusing on the transition of care for youth with SHCN.
- Analysis of challenges from the pediatrician's perspective.
- Examination of guidelines and emerging strategies for transition.
Main Results:
- Transition challenges are common and impact health outcomes for youth with SHCN.
- Specific needs of youth with intellectual disabilities require tailored approaches.
- Multidisciplinary collaboration and defined provider roles are essential.
Conclusions:
- Enhanced coordination across organizational levels is necessary for successful transition.
- Clearer roles for healthcare providers and collaborative efforts can overcome resource limitations.
- Proactive transition planning improves health outcomes for youth with neurological disorders.
Abstract:
Inadequate preparation for transition to adult-oriented systems of care leads to gaps in treatment and can result in poor health outcomes for youth with special healthcare needs. Coordination between primary care and specialists must occur at multiple levels of organizations to improve transition for youth with neurological disorders. This review focuses on the transition process from the pediatrician's perspective, highlights common obstacles, addresses the unique needs of youth with intellectual disabilities, reviews relevant guidelines, and discusses emerging transition strategies. Key recommendations include defining the roles of the different healthcare providers and using multidisciplinary collaboration to overcome limited resources.
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