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What we talk about when we talk about pediatric suffering
1Oregon Health and Science University, Portland, OR, USA. tatety@ohsu.edu.
Insights
Pediatric suffering should be viewed as an evaluation of unmet needs, not a mental state. Children
Area of Science:
- Philosophy of Medicine
- Pediatric Ethics
- Social Epistemology
Background:
- Current pediatric practice often mischaracterizes child suffering.
- Existing theories of suffering fail to adequately include non-verbal children.
- The concept of pediatric suffering is often reduced to binary ethical dilemmas.
Purpose of the Study:
- To reframe pediatric suffering as an evaluative judgment rather than a subjective mental state.
- To develop a more inclusive understanding of suffering in infants and children.
- To highlight the social and political dimensions of pediatric suffering.
Main Methods:
- Analysis of the use of the term 'suffering' in pediatric contexts.
- Critique of experiential accounts of suffering concerning non-verbal individuals.
- Application of philosophical arguments from Alastair MacIntyre's 'Dependent Rational Animals'.
Main Results:
- Identified two problematic poles in pediatric suffering: denial of suffering in cognitively impaired children and ethical elimination of suffering children.
- Found experiential accounts of suffering inadequate due to flawed assumptions about non-expressive individuals.
- Proposed that child suffering is best understood as the absence of essential conditions like love, warmth, and pain-freedom.
Conclusions:
- Pediatric suffering is fundamentally an evaluation of unmet needs and conditions, underscoring children's dependency.
- Child suffering is inherently a social and political issue, as children cannot independently mitigate their own suffering.
- Recognizing pediatric suffering as an evaluation necessitates societal responsibility for children's well-being and flourishing.
Abstract:
In this paper I aim to show why pediatric suffering must be understood as a judgment or evaluation, rather than a mental state. To accomplish this task, first I analyze the various ways that the label of suffering is used in pediatric practice. Out of this analysis emerge what I call the twin poles of pediatric suffering. At one pole sits the belief that infants and children with severe cognitive impairment cannot suffer because they are nonverbal or lack subjective life experience. At the other pole exists the idea that once child suffering reaches some threshold it is ethical to eliminate the sufferer. Concerningly, at both poles, any particular child vanishes from view. Second, in an attempt to identify a theory of suffering inclusive of children, I examine two prominent so-called experiential accounts of suffering. I find them both wanting on account of their absurd entailments and their flawed assumptions regarding the subjective experiences of people who cannot communicate expressively. Finally, I extend arguments found in Alastair MacIntyre's Dependent Rational Animals to argue that child suffering can be understood only as a set of absences-absences of conditions such as love, warmth, and freedom from pain. An evaluation of these absences reveals the exquisite dependency of children. It also discloses why pediatric suffering is necessarily a social and political event. Unlike adults, children will never be either the authors or the mitigators of their own suffering. Rather, children must rely wholly on others in order to resist suffering, grow, and flourish.
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