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Broadening diversity through creative involvement to identify research priorities
Stephanie Tierney1, Shoba Dawson2, Anne-Marie Boylan1
1Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
Research Involvement and Engagement
|January 7, 2021
Summary
Art effectively included diverse groups in research priority setting. This patient and public involvement (PPI) approach engaged individuals with dementia, mental/physical health conditions, and South Asian heritage, ensuring their voices shaped future studies.
Area of Science:
- Health Services Research
- Patient and Public Involvement (PPI)
- Creative Arts in Research
Background:
- Traditional patient and public involvement (PPI) methods may exclude marginalized groups with poorer healthcare experiences.
- Underrepresented populations, including those with dementia, mental/physical health conditions, and South Asian heritage, often have their voices unheard in research prioritization.
- Art offers a novel vehicle to facilitate inclusive participation in research priority setting.
Purpose of the Study:
- To explore the use of art as a method for engaging diverse and underrepresented groups in research priority setting.
- To identify healthcare research priorities from the perspectives of individuals with dementia, complex health conditions, and South Asian heritage.
- To assess the impact of using art in patient and public involvement (PPI) activities.
Main Methods:
- Engaged existing community groups to recruit participants from targeted demographics.
- Conducted workshops where participants shared healthcare experiences.
- An artist created artwork reflecting identified research priorities, followed by a Twitter chat for discussion.
Main Results:
- Identified key research priorities: improved dementia care coordination, information access for those with mental/physical health conditions, and women's health discussions in South Asian communities.
- Artwork successfully represented these priorities, validating participants' experiences and fostering interest in research development.
- Participants reported feeling heard, and Twitter chat participants noted art's potential for broad PPI engagement.
Conclusions:
- Art serves as an effective medium for inclusive patient and public involvement (PPI) in research prioritization.
- This creative approach enhances engagement and ensures diverse perspectives inform healthcare research.
- The findings suggest art-based methods can be valuable for future PPI initiatives, particularly for reaching underrepresented populations.
Keywords:
ArtCreative approachesDementiaDiversityMental healthResearch prioritisationSouth Asian heritageMore Related Videos
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