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The Cultivation of Digital Health Citizenship
Dimitra Petrakaki1, Eva Hilberg2, Justin Waring3
1University of Sussex, UK.
Social Science & Medicine (1982)
|January 12, 2021
Summary
Digital health citizenship involves patients generating health knowledge and data. This technology fosters community and demands for change, but also increases individual responsibility for health management.
Area of Science:
- Sociology of Health and Illness
- Digital Health Studies
- Health Policy Analysis
Background:
- Contemporary health policy emphasizes individual responsibility for health management via digital technology.
- The role of digital technology in citizenship is increasingly debated, shifting from facilitative to productive.
Purpose of the Study:
- To unpack the contested role of technology in digital health citizenship.
- To analyze how digital health technology shapes patient engagement and responsibilities.
- To explore the intersection of biosociality and technosociality in health citizenship.
Main Methods:
- Longitudinal data collection within the English healthcare context.
- Analysis of patient involvement in generating health knowledge, including big data, digital artifacts, experiential knowledge, and service feedback.
Main Results:
- Digital health citizenship is produced through active patient participation in knowledge creation.
- Digital health technology can foster altruism, belonging, and demands for healthcare change.
- Technology simultaneously responsibilizes individuals for self-care and the care of others, often through algorithmic means like nudges.
Conclusions:
- Digital health citizenship is complex, involving both empowerment and increased responsibility.
- Technology's role is not merely facilitative but actively shapes citizenship, sometimes in isolated, algorithmically-driven ways.
- This study contributes to understanding health citizenship at the nexus of biosociality and technosociality.
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