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Breast Implant-Associated Anaplastic Large Cell Lymphoma Online Education Tools: A Multimetric Analysis
Pooja S Yesantharao1, Megan F Hunt, Faraah Bekheet
1From the Department of Plastic and Reconstructive Surgery, Johns Hopkins Hospital, Baltimore, MD.
Annals of Plastic Surgery
|January 14, 2021
Summary
Online information on breast implant-associated anaplastic large cell lymphoma (BIA-ALCL) varies in quality. Governmental and academic sources offer more reliable content, but overall online resources need improvement for patient understanding and actionability.
Area of Science:
- Oncology and medical device safety.
- Public health and patient education.
Background:
- Public attention on breast implant safety and recalls has increased online searches.
- Accurate, comprehensible, and culturally sensitive information is crucial for patients seeking breast implant-related health data.
- Breast implant-associated anaplastic large cell lymphoma (BIA-ALCL) is a growing concern.
Purpose of the Study:
- To assess the suitability of online educational materials about BIA-ALCL for patients.
- To evaluate text-based and video-based resources for accuracy, comprehensibility, actionability, and cultural concordance.
Main Methods:
- A cross-sectional study evaluated 30 websites and 15 videos using validated measures.
- Two reviewers assessed resources, comparing text and video formats.
- Statistical analyses included Kruskal-Wallis and Fisher exact tests.
Main Results:
- Resources from academic/physician or governmental/nonprofit sources were generally more comprehensive and higher quality.
- Website actionability averaged 38%, below the 70% benchmark for useful resources.
- Median suitability score for websites was 57% ('adequate'), but cultural sensitivity scores averaged 2.4 (below 2.5). Videos were generally more understandable than websites.
Conclusions:
- Online BIA-ALCL resources differ significantly in quality and content based on their source.
- Providers should direct patients to .gov or .org websites and academic/governmental videos for clearer information.
- There is a clear need to enhance the quality and suitability of online patient education materials regarding BIA-ALCL.