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Palliative Care in Movement Disorders: an Evolving Field.

Zachary A Macchi1, Christopher G Tarolli2,3, Benzi M Kluger2,3,4

  • 1Department of Neurology, University of Colorado, Aurora, CO Building 400, Mail Stop F429, 12469 E 17th Place, Aurora, CO, 80045, USA. Zachary.macchi@cuanschutz.edu.

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PubMed
Summary

Palliative care (PC) is crucial for movement disorder patients and families, improving quality of life. Integrating PC early, assessing holistic needs, and further research are vital for optimal care.

Keywords:
Advance care planning (MeSH ID: D032722)End of life care (MeSH ID: D013727)Movement disorders (MeSH ID: D009069)Palliative care (MeSH ID: D010166)Quality of life (MeSH ID: D011788)

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Area of Science:

  • Neurology
  • Palliative Care
  • Movement Disorders

Background:

  • Movement disorders significantly impact patients and families throughout the disease trajectory.
  • Palliative care (PC) addresses common needs, enhancing quality of life from diagnosis to end-of-life.
  • Current care models may not fully address the complex psychosocial and spiritual needs of this population.

Purpose of the Study:

  • To review the evidence for palliative care in movement disorders.
  • To describe the practical application of palliative care in clinical settings.
  • To identify future research priorities in this specialized area.

Main Methods:

  • Comprehensive literature review of palliative care in movement disorders.
  • Analysis of current clinical practices and patient-reported outcomes.
  • Synthesis of existing palliative care frameworks and their applicability.

Main Results:

  • Palliative care needs are prevalent in movement disorder patients and families.
  • Early advance care planning, guided by PC principles, improves outcomes.
  • Systematic assessment of non-motor, psychosocial, and spiritual needs is essential.
  • Emerging PC models can meet the unique requirements of this population.

Conclusions:

  • Palliative care significantly improves patient and caregiver-centered outcomes in movement disorders.
  • There is a need for research to develop and implement tailored PC approaches.
  • Integrating PC early is recommended to enhance quality of life and care.