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Parental Decision-Making in the Pediatric Intensive Care Unit: An Integrative Review
Jesse Wool1,2, Sharon Y Irving1,2, Salimah H Meghani1
1University of Pennsylvania, Philadelphia, USA.
Insights
Parents making healthcare decisions for critically ill children in the pediatric intensive care unit (PICU) are influenced by communication, their desire for final say, and personal factors. Understanding these elements is key.
Area of Science:
- Pediatric Intensive Care
- Medical Decision-Making
- Parental Health Psychology
Background:
- Parents frequently make critical healthcare decisions for children in the pediatric intensive care unit (PICU).
- Factors influencing these parental decisions in pediatric critical illness are complex and varied.
- Understanding parental decision-making is crucial for effective pediatric critical care.
Purpose of the Study:
- To review and synthesize empirical literature on factors influencing parents' decision-making regarding their seriously ill children's care in the PICU.
- To identify key themes and findings from studies published between 2013 and 2018.
- To provide insights into parental perspectives on critical care decisions.
Main Methods:
- An integrative review methodology was employed.
- Literature search focused on empirical studies published from 2013 to 2018.
- Seventeen studies met the inclusion criteria for analysis.
Main Results:
- Effective parent-clinician communication is a critical factor in PICU decision-making.
- Most parents desire to be the ultimate decision-makers for their critically ill child.
- Parental emotions, support systems, and the child's clinical status significantly impact decision-making processes.
Conclusions:
- Parental perspectives are vital when discussing serious illness care for children in the PICU.
- Further research is needed on the impact of the parent-clinician interaction on decision-making and outcomes.
- Acknowledging parental influence can improve care planning and patient outcomes in pediatric critical care.
Abstract:
Parents are commonly responsible for making health care decisions for their seriously ill children in the pediatric intensive care unit (PICU); however, the factors influencing their decisions may vary. This integrative review examined the empirical literature between 2013 and 2018 to understand factors pertaining to parents' decision-making about serious illness care of their children in the PICU. Seventeen studies met the inclusion criteria with three key findings. First, parent-clinician communication in the PICU is critical; second, most parents want to be the final decision-maker for their critically ill child; and third, parents' emotions, support systems, and the child's clinical status impact decision-making. Parental perspectives are important to consider when discussing serious illness care decisions for critically ill children. Further inquiry is needed into how the parent-clinician encounter impacts the decision-making process and subsequent outcomes in this population.
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