Resource Use and Outcomes of Pediatric Congenital Heart Disease Admissions: 2003 to 2016

Jonathan B Edelson1,2,3, Joseph W Rossano1,2,3, Heather Griffis4

  • 1Division of Cardiology Cardiac Center, the Children's Hospital of PhiladelphiaUniversity of Pennsylvania Perelman School of Medicine Philadelphia PA.

Insights

Hospitalizations for children with congenital heart disease (CHD) increased, with higher costs and mortality. Despite improved survival rates for CHD patients, they represent a growing share of pediatric inpatient deaths, highlighting the need for better resource allocation.

Area of Science:

  • Pediatric Cardiology
  • Health Services Research
  • Public Health

Background:

  • Congenital heart disease (CHD) significantly impacts healthcare resource utilization.
  • Limited data exist on temporal trends in resource use and mortality for pediatric CHD admissions.
  • This study addresses the need for updated information on CHD hospitalization patterns.

Purpose of the Study:

  • To analyze trends in the frequency, medical complexity, and outcomes of pediatric hospital admissions for CHD from 2003 to 2016.
  • To compare resource utilization and mortality rates between CHD and non-CHD pediatric admissions.
  • To assess changes in healthcare charges and mortality rates over time for children with CHD.

Main Methods:

  • Utilized the Kids' Inpatient Database (KID), a nationally representative dataset.
  • Included inpatient admissions for patients under 18 years old with CHD between 2003 and 2016.
  • Analyzed admission frequency, patient demographics, comorbidities, healthcare charges, and mortality rates.

Main Results:

  • CHD admissions increased by 31.8% from 2003 to 2016, while overall pediatric admissions decreased by 13.4%.
  • CHD admissions were more likely to involve younger children (<1 year) and those with complex chronic conditions.
  • Adjusted median charges for CHD admissions increased significantly, while mortality rates decreased from 3.2% to 2.7% over the study period.
  • Despite decreased mortality, CHD admissions constituted an increasing proportion of all pediatric inpatient deaths (18.0% in 2003 to 24.5% in 2016).

Conclusions:

  • Children with CHD face significantly higher mortality risks and healthcare costs compared to their peers without CHD.
  • While survival rates for pediatric CHD admissions have improved, the overall burden on healthcare resources and mortality share has increased.
  • Optimizing resource allocation is crucial for improving outcomes in this high-risk pediatric population.

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