Resource Use and Outcomes of Pediatric Congenital Heart Disease Admissions: 2003 to 2016
Related Experiment Video
Updated: Nov 18, 2025

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Jonathan B Edelson1,2,3, Joseph W Rossano1,2,3, Heather Griffis4
1Division of Cardiology Cardiac Center, the Children's Hospital of PhiladelphiaUniversity of Pennsylvania Perelman School of Medicine Philadelphia PA.
Insights
Hospitalizations for children with congenital heart disease (CHD) increased, with higher costs and mortality. Despite improved survival rates for CHD patients, they represent a growing share of pediatric inpatient deaths, highlighting the need for better resource allocation.
Area of Science:
- Pediatric Cardiology
- Health Services Research
- Public Health
Background:
- Congenital heart disease (CHD) significantly impacts healthcare resource utilization.
- Limited data exist on temporal trends in resource use and mortality for pediatric CHD admissions.
- This study addresses the need for updated information on CHD hospitalization patterns.
Purpose of the Study:
- To analyze trends in the frequency, medical complexity, and outcomes of pediatric hospital admissions for CHD from 2003 to 2016.
- To compare resource utilization and mortality rates between CHD and non-CHD pediatric admissions.
- To assess changes in healthcare charges and mortality rates over time for children with CHD.
Main Methods:
- Utilized the Kids' Inpatient Database (KID), a nationally representative dataset.
- Included inpatient admissions for patients under 18 years old with CHD between 2003 and 2016.
- Analyzed admission frequency, patient demographics, comorbidities, healthcare charges, and mortality rates.
Main Results:
- CHD admissions increased by 31.8% from 2003 to 2016, while overall pediatric admissions decreased by 13.4%.
- CHD admissions were more likely to involve younger children (<1 year) and those with complex chronic conditions.
- Adjusted median charges for CHD admissions increased significantly, while mortality rates decreased from 3.2% to 2.7% over the study period.
- Despite decreased mortality, CHD admissions constituted an increasing proportion of all pediatric inpatient deaths (18.0% in 2003 to 24.5% in 2016).
Conclusions:
- Children with CHD face significantly higher mortality risks and healthcare costs compared to their peers without CHD.
- While survival rates for pediatric CHD admissions have improved, the overall burden on healthcare resources and mortality share has increased.
- Optimizing resource allocation is crucial for improving outcomes in this high-risk pediatric population.
Abstract:
Background Children with congenital heart disease (CHD) are known to consume a disproportionate share of resources, yet there are limited data concerning trends in resource use and mortality among admitted children with CHD. We hypothesize that charges in CHD-related admissions increased but that mortality improved over time. Methods and Results This study, including patients <18 years old with CHD, examined inpatient admissions from the nationally representative Kids' Inpatient Database from 2003 to 2016 in order to assess the frequency, medical complexity, and outcomes of CHD hospital admissions. A total of 859 843 admissions of children with CHD were identified. CHD admissions increased by 31.8% from 2003 to 2016, whereas overall pediatric admissions decreased by 13.4%. Compared with non-CHD admissions, those with CHD were more likely to be <1 year of age (80.5% versus 63.3%), and to have ≥1 complex chronic condition (39.7% versus 9.3%). For CHD admissions, mortality was higher (2.97% versus 0.31%) and adjusted median charges greater ($48 426 [interquartile range (IQR), $11.932-$161 048] versus $4697 [IQR, $2551-$12 301]) (P<0.0001 for all). Among CHD admissions, whereas adjusted median charges increased from $35 577 (IQR, $9303-$110 439) to $61 696 (IQR, $15 212-$219 237), mortality decreased from 3.2% to 2.7% (P for trend <0.0001). CHD admissions accounted for an increased proportion of all inpatient deaths, from 18.0% in 2003 to 24.5% in 2016. Conclusions Children admitted with CHD are 10 times more likely to die than those without CHD and have higher charges. Although the rate of mortality in CHD admissions decreased, children with CHD accounted for an increasing proportion of all pediatric inpatient deaths. Effective resource allocation is critical to optimize outcomes in these high-risk patients.
Related Concept Videos
Cardiac Catheterization II: Right Heart Catheterization
Heart Failure V: Medical Management
Cardiomyopathy V: Interprofessional Care
Heart Failure VI: Adjunct Therapies

