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New catalogue of conditions that may require pediatric palliative care

Tomasz Dangel1, Urszula Wojciechowska2

  • 1The Warsaw Hospice for Children Foundation, Tadeusz Dąbrowski Research and Training Cente.

Przeglad Epidemiologiczny
|February 12, 2021
PubMed

Insights

The current list of conditions for pediatric palliative care in Poland is inadequate. This study developed a new, comprehensive catalogue based on epidemiological data to improve patient access to essential care.

Area of Science:

  • Pediatrics
  • Public Health
  • Epidemiology

Background:

  • Pediatric palliative care in Poland is guided by a Minister of Health regulation.
  • Previous research indicates the existing catalogue of conditions is incomplete and insufficient.
  • This highlights a critical gap in accessing necessary care for children.

Purpose of the Study:

  • To evaluate the completeness and adequacy of the current Minister of Health's catalogue for pediatric palliative care.
  • To create an improved catalogue utilizing epidemiological data specific to the Polish population.
  • To ensure better identification and access to palliative care for children.

Main Methods:

  • Analysis of Statistics Poland data on mortality causes in children and young adults (1999-2018).
  • Inclusion of diagnostic data from the Warsaw Hospice for Children Foundation (1994-2019).
  • Comparative analysis between the developed catalogue and the existing Minister of Health's catalogue.

Main Results:

  • A new, comprehensive catalogue of conditions requiring pediatric palliative care in Poland was developed.
  • Additional criteria for patient recruitment were established.
  • The study confirmed the significant incompleteness and inadequacy of the Minister of Health's existing catalogue.

Conclusions:

  • The Minister of Health's regulation requires amendment to include a more accurate list of conditions for pediatric palliative care and hospice services.
  • There is a need for established standards and medical procedures for pediatric palliative care in Poland.
  • Patient recruitment for palliative care should be physician-led, based on recognized medical standards, not solely on the inadequate official catalogue.
Abstract

Keywords:
childrenepidemiologyhealth policyhospicepalliative care

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