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Area of Science:

  • Pediatric ophthalmology and visual impairment research.
  • Augmentative and Alternative Communication (AAC) and assistive technology.
  • Interdisciplinary child development and special education services.

Background:

  • Cortical visual impairment (CVI) is the leading cause of childhood vision loss.
  • Augmentative and Alternative Communication (AAC) methods are heavily reliant on visual input.
  • There is a significant knowledge gap regarding the prevalence of CVI in children using AAC and research on AAC interventions for this population.

Purpose of the Study:

  • To assess the alignment between the needs of children with CVI using AAC and available services.
  • To identify barriers hindering effective service delivery for children with CVI who use AAC.
  • To propose priorities for enhancing outcomes and support for this population.

Main Methods:

  • An anonymous online survey was administered to professionals across various school-based disciplines.
  • Parents of children with CVI who use AAC also participated in the survey.
  • Data collection focused on identifying challenges and service gaps.

Main Results:

  • Professionals reported insufficient knowledge and training in CVI and AAC, limited access to experts, and fragmented service delivery.
  • Parents indicated their children predominantly use non-symbolic, body-based communication and lack access to visually-based symbolic AAC.
  • A significant disparity exists between the communication needs of children with CVI and the current service provision.

Conclusions:

  • There is a critical need for accessible, reliable information and training on CVI and AAC for all stakeholders, including parents and professionals.
  • Disseminating CVI and AAC knowledge at preservice and in-service levels is essential.
  • Future research should focus on AAC approaches that effectively support language and communication development in children with CVI.