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Parents' perspectives on conflict in paediatric healthcare: a scoping review

Emily Parsons1,2, Anne-Sophie Darlington2

  • 1Savannah Neurology, Evelina London Children's Hospital, London, UK emily.parsons@gstt.nhs.uk.

Archives of Disease in Childhood
|February 17, 2021
PubMed

Insights

This study reveals parental perspectives on conflict during a child's end-of-life care, highlighting communication, trust, and differing views on best interests. Parents emphasize their expertise and unique insights into suffering.

Area of Science:

  • Pediatric Palliative Care
  • Bioethics
  • Family Medicine

Background:

  • Conflict in pediatric end-of-life care is a growing concern, impacting patients, families, and healthcare professionals.
  • Existing research primarily focuses on healthcare professionals' (HCPs) perspectives on conflict, leaving parental views underrepresented.

Purpose of the Study:

  • To explore parental views on conflict during a child's end-of-life care.
  • To map parental perspectives on conflict against those of healthcare professionals.

Main Methods:

  • A comprehensive scoping review of literature published between 1997 and 2019.
  • Searches conducted across major databases including CINAHL, PubMed, Web of Science, Embase, and Medline.
  • Inclusion criteria focused on studies involving parents of children receiving palliative or end-of-life care and reporting on conflict or disagreements.

Main Results:

  • Ten papers were identified that included parental views on conflict.
  • Conflict themes included communication breakdown, trust issues, differing understandings of 'best interest', treatment disagreements, spirituality, and decision-making processes.
  • Parental expertise, perspectives on suffering, and decision-making styles emerged as significant themes, with some unique to the parental viewpoint.

Conclusions:

  • Parents' perspectives on suffering and 'best interest' are crucial in end-of-life care conflicts.
  • Recognizing parents as experts in their child's care is vital for resolving conflicts.
  • Parental insights offer a unique dimension to understanding and managing conflict in pediatric end-of-life care.
Abstract

Keywords:
palliative carepsychology

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