Assertiveness in the patients with thalassaemia major: A qualitative study

Area of Science:

• Medical Sociology
• Patient Psychology
• Hematology

Background:

• Thalassaemia major is a severe inherited blood disorder requiring lifelong treatment.
• Understanding patient psychological constructs like assertiveness is vital for holistic care.
• Limited research exists on assertiveness within the thalassaemia major patient population.

Purpose of the Study:

• To explore the concept of assertiveness in patients diagnosed with thalassaemia major.
• To identify the core components and manifestations of assertiveness in this specific patient group.

Main Methods:

• Qualitative study employing a conventional content analysis design.
• Semi-structured interviews were conducted with 16 purposefully selected patients with thalassaemia major.
• Data analysis utilized MAXQDA10 software for thematic development.

Main Results:

• Three sub-concepts emerged from the data regarding assertiveness:
• 1. Courage to self-presentation: Patients' willingness to express themselves.
• 2. Demonstrating abilities: Highlighting personal skills and capabilities.
• 3. Attendance in groups: Active participation in social or support settings.

Conclusions:

• Assertiveness in thalassaemia major is multifaceted, encompassing self-expression, showcasing abilities, and social engagement.
• These findings can inform psychosocial support interventions for individuals with thalassaemia major.
• Further research could explore the impact of assertiveness training on quality of life for these patients.