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Published on: September 19, 2019
Narrative Diaries in Pediatrics: A Scoping Review
Vincenza Sansone1, Immacolata Dall'Oglio2, Francesco Gesualdo3
1Department of Biomedicine and Prevention, University of Rome Tor Vergata, Rome, Italy; Department of Pediatric Oncology, AORN Santobono-Pausilipon, Naples, Italy.
Narrative health diaries capture children's illness experiences. While adaptable across settings, research is needed to assess their impact on pediatric health outcomes.
Area of Science:
- Pediatric Health Research
- Qualitative Research Methods
- Patient Experience Documentation
Background:
- Health diaries, incorporating clinical and narrative elements, are utilized in pediatrics.
- These tools study children's and families' illness experiences and coping mechanisms.
Purpose of the Study:
- To synthesize existing literature on narrative health diaries.
- Utilized the PRISMA extension for scoping reviews to guide the study.
Main Methods:
- Searched PubMed, Embase, and CINAHL without time restrictions.
- Included English-language studies on narrative diaries involving children, adolescents, or their caregivers.
- Limited sources to narrative diaries for children/adolescents and/or parents/caregivers.
Main Results:
- 36 articles were included in the review.
- The home was the most common setting (61%) for diary implementation, followed by hospitals (17%) and schools (14%).
- Children/adolescents were the most frequent diarists (50%), with paper diaries being the most common format (53%).
Conclusions:
- Narrative health diaries effectively document patient experiences from the child's or family's perspective.
- The adaptability of narrative diaries to various settings and pediatric populations is evident.
- Further research is required to determine the impact of narrative diary use on children's health outcomes.
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