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Patients Are Knowledge Workers in the Clinical Information Space
Elizabeth Lerner Papautsky1, Emily S Patterson2
1Department of Biomedical and Health Information Sciences, University of Illinois at Chicago, Chicago, Illinois, United States.
Understanding patient knowledge is crucial for effective, patient-centered healthcare. Characterizing patient contributions to clinical information ensures a complete patient picture and informs better treatment planning.
Area of Science:
- Health Informatics
- Human Factors in Medicine
- Patient-Centered Care
Background:
- Limited research exists on understanding patient knowledge and cognition.
- Patients possess unique insights vital for informed clinical decision-making.
- Characterizing patient knowledge is essential for achieving patient-centered care.
Purpose of the Study:
- To explore the relevance of patient knowledge in healthcare provision.
- To propose a framework for representing patient knowledge types.
- To highlight the utility of human factors in eliciting patient knowledge.
Main Methods:
- Theoretical overview of patient knowledge in care.
- Application of historical knowledge acquisition perspectives.
- Illustrative vignettes to demonstrate concepts.
- Utilizing human factors principles and methods.
Main Results:
- Patient knowledge is integral to the clinical information space.
- Patient contributions are essential for a complete clinical picture.
- A human factors perspective enhances patient-centered care.
Conclusions:
- Patients are vital contributors to clinical information.
- Incomplete patient knowledge leads to an incomplete clinical picture.
- Human factors approaches support patient-centered care and health IT solutions.
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