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Enacting agency: movement, dementia, and interaction.

Rossio Motta-Ochoa1,2, Natalia Incio Serra1,2, Allison Frantz2,3

  • 1School of Physical & Occupational Therapy, Faculty of Medicine, McGill University, Montreal, Quebec.

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|March 2, 2021
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Summary

Arts programs can foster agency in individuals with dementia by allowing them to adapt, resist, or improvise within structured activities. This approach counters narratives of loss and enhances their sense of self.

Keywords:
Agencyarts-based interventionsethnographic methodspersons with dementiavideo analysis

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Area of Science:

  • Gerontology
  • Social Sciences
  • Arts Therapy

Background:

  • Arts-based programs offer a counter-narrative to the typical experience of loss in dementia.
  • These programs can foster expressions of agency among individuals with dementia.

Purpose of the Study:

  • Examine how an arts-based movement program, Mouvement de passage, supports agency in individuals with dementia.
  • Utilize social science theories on the interaction between structure and agency.

Main Methods:

  • Employed ethnographic methods to observe agency enactment within the program's structure.
  • Video recorded and iteratively analyzed program sessions.

Main Results:

  • Participants expressed agency by transforming the program's structure.
  • Participants demonstrated agency by resisting the program's structure.
  • Collective improvisation of movements was another key expression of agency.

Conclusions:

  • Individual and collective agency shape the movements of people with dementia.
  • The Mouvement de passage program's design can inform interventions to foster agency in this population.