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COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions

Yincent Tse1, Anne-Sophie E Darlington2, Kay Tyerman3

  • 1Great North Children's Hospital, Newcastle Upon Tyne, UK. yincenttse@nhs.net.

Pediatric Nephrology (Berlin, Germany)
|March 20, 2021
PubMed

Insights

Young kidney patients and their parents faced significant concerns during COVID-19 lockdowns, particularly regarding viral and kidney symptoms. Tailored advice and individualized risk assessment are crucial for shared decision-making in pediatric kidney care.

Area of Science:

  • Pediatric Nephrology
  • Public Health
  • Psychology

Background:

  • The initial COVID-19 pandemic imposed lockdowns and social isolation on vulnerable young kidney patients in the UK.
  • Understanding the experiences, information, decision-making, and support needs of these pediatric and young adult (CYA) kidney patients and their parents during this period is essential.

Purpose of the Study:

  • To investigate the experiences, concerns, and support needs of children and young adults with kidney conditions during the COVID-19 pandemic.
  • To identify the impact of lockdown and shielding on CYA kidney patients and their families.

Main Methods:

  • A UK-wide online survey was co-produced with patients, targeting CYA aged 12-30 and parents of children under 18 with kidney conditions.
  • The survey incorporated both qualitative open-text and quantitative closed questions.
  • Thematic content analysis was employed to analyze the qualitative data.

Main Results:

  • 118 CYA and 197 parents responded. CYA concerns included viral/kidney symptoms and educational/work impacts. Parents expressed greater fear of the virus and concerns about transmission and impact on other children.
  • CYA anticipated severe illness from COVID-19, experienced lost opportunities, and were frustrated by non-compliance with social distancing. Positive outcomes included improved family relationships.
  • Shielded patients reported greater negative psychological impact. A minority desired more support, highlighting the need for tailored advice.

Conclusions:

  • The study highlights substantial concerns among young kidney patients and their families during the pandemic.
  • There is a clear need for accurate, tailored advice based on individualized risks to enhance shared decision-making in pediatric kidney care.
Abstract

Keywords:
AgeCOVID-19PaediatricsQuality of life

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