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Exploring community engaged research experiences and preferences: a multi-level qualitative investigation
Hae-Ra Han1,2,3, Ashley Xu4, Kyra J W Mendez4
1The Johns Hopkins University School of Nursing, Baltimore, MD, USA. hhan3@jhu.edu.
Community engaged research requires ongoing effort, clear partner roles, and mutual trust for success. Enhancing capacity building and communication are crucial for future community engaged research initiatives.
Area of Science:
- Health Research
- Community Engagement
- Health Disparities
Background:
- Community engagement enhances research relevance, translatability, and sustainability.
- Effective engagement is key to reducing health disparities.
- This study explores strategies and areas for improvement in community engaged research.
Purpose of the Study:
- To explore community engagement strategies used by research teams.
- To identify areas for enhancing future community engaged research.
Main Methods:
- A forum hosted by the Johns Hopkins Institute for Clinical and Translational Research's Community Engagement Program.
- 50 researchers, staff, and community partners participated in semi-structured group interviews.
- Content analysis of transcribed audiotaped interviews.
Main Results:
- Four main themes emerged: ongoing process, defined partner roles, mutual trust/transparency, and evolving outcome measurement.
- Subthemes included engagement stages, mission-driven approaches, breadth/depth of engagement, partner roles, recruitment, trust-building, communication, and conflict.
- Key findings emphasize the iterative nature of engagement and the importance of clear communication and trust.
Conclusions:
- Community engaged research presents both benefits and challenges.
- Enhanced capacity building, including training and communication tools, is needed for researchers and community partners.
- Future efforts should focus on strengthening these elements to optimize community engaged research.
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