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Patient-Reported Outcomes of Bladder and Bowel Control in Children with Spina Bifida

Helen Träff1, Anna Börjesson1, Martin Salö1

  • 1Department of Clinical Sciences, Pediatrics, Lund University, 22185 Lund, Sweden.

Children (Basel, Switzerland)
|April 3, 2021
PubMed

Insights

Many children with spina bifida experience poor bladder and bowel control despite management. A significant number underwent multiple surgeries, indicating a need for improved treatment strategies.

Area of Science:

  • Pediatric Urology
  • Neuroscience
  • Rehabilitation Medicine

Background:

  • Neurogenic bladder and bowel dysfunction are common in children with spina bifida.
  • Patient-reported outcomes and surgical burden are critical aspects of care.

Purpose of the Study:

  • To assess patient-reported morbidity associated with neurogenic bladder and bowel dysfunction in pediatric spina bifida patients.
  • To quantify the surgical burden in this cohort.

Main Methods:

  • Cross-sectional cohort study of children with meningocele or myelomeningocele (born 2000-2016).
  • Utilized data from a tertiary spina bifida center, including medical charts and a national follow-up program.

Main Results:

  • Clean intermittent catheterization (CIC) used by 76%, anticholinergic treatment by 58%.
  • Over one-third reported daily urinary leakage; 11% reported inadequate bowel control results.
  • 42% of patients had undergone urogenital or gastrointestinal operations (109 procedures total).

Conclusions:

  • Despite management, many children with spina bifida experience inadequate bladder and bowel control.
  • A subset of patients requires numerous surgical interventions.
  • Further research into aggressive medical and surgical approaches is warranted to improve continence.
Abstract

Keywords:
bowel managementneurogenic bladderoutcomespina bifidasurgery

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