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Quality Indicators in Pediatric Palliative Care: Considerations for Latin America
Gregorio Zuniga-Villanueva1,2, Jorge Alberto Ramos-Guerrero3, Monica Osio-Saldaña4
1Department of Pediatrics, Tecnologico de Monterrey, Monterrey 64849, Mexico.
Insights
Pediatric palliative care (PPC) resources are insufficient globally, especially in Latin America. Developing regional quality indicators is vital to address unique sociocultural needs and improve care for children.
Area of Science:
- Palliative Care
- Global Health
- Pediatrics
Background:
- Pediatric palliative care (PPC) is a growing field with insufficient global resources.
- PPC services in Latin America are underdeveloped and unevenly distributed compared to other regions.
- There is a lack of consensus on quality indicators for measuring the impact of PPC.
Purpose of the Study:
- To explore limitations of current PPC quality indicators.
- To describe the Latin American context affecting PPC development.
- To guide the creation of culturally relevant PPC standards and quality indicators for the region.
Main Methods:
- Literature review on existing quality indicators for pediatric palliative care.
- Analysis of sociocultural factors influencing PPC in Latin America.
- Synthesis of findings to propose a framework for regional quality indicators.
Main Results:
- Current quality indicators do not adequately address the specific needs and context of Latin America.
- Sociocultural characteristics significantly impact the perception, acceptance, and implementation of PPC services in the region.
- No defined set of quality indicators currently exists for Latin American PPC.
Conclusions:
- There is an urgent need for region-specific quality indicators for pediatric palliative care in Latin America.
- Developing these indicators must consider unique sociocultural aspects to ensure effective implementation and improve care for children.
- This work provides a foundation for establishing culturally sensitive standards of care and quality metrics for PPC in Latin America.
Abstract:
Pediatric palliative care is a growing field in which the currently available resources are still insufficient to meet the palliative care needs of children worldwide. Specifically, in Latin America, pediatric palliative care services have emerged unevenly and are still considered underdeveloped when compared to other regions of the world. A crucial step in developing pediatric palliative care (PPC) programs is delineating quality indicators; however, no consensus has been reached on the outcomes or how to measure the impact of PPC. Additionally, Latin America has unique sociocultural characteristics that impact the perception, acceptance, enrollment and implementation of palliative care services. To date, no defined set of quality indicators has been proposed for the region. This article explores the limitations of current available quality indicators and describes the Latin American context and how it affects PPC development. This information can help guide the creation of standards of care and quality indicators that meet local PPC needs while considering the sociocultural landscape of Latin America and its population.
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