Quality Indicators in Pediatric Palliative Care: Considerations for Latin America

Gregorio Zuniga-Villanueva1,2, Jorge Alberto Ramos-Guerrero3, Monica Osio-Saldaña4

  • 1Department of Pediatrics, Tecnologico de Monterrey, Monterrey 64849, Mexico.

Insights

Pediatric palliative care (PPC) resources are insufficient globally, especially in Latin America. Developing regional quality indicators is vital to address unique sociocultural needs and improve care for children.

Area of Science:

  • Palliative Care
  • Global Health
  • Pediatrics

Background:

  • Pediatric palliative care (PPC) is a growing field with insufficient global resources.
  • PPC services in Latin America are underdeveloped and unevenly distributed compared to other regions.
  • There is a lack of consensus on quality indicators for measuring the impact of PPC.

Purpose of the Study:

  • To explore limitations of current PPC quality indicators.
  • To describe the Latin American context affecting PPC development.
  • To guide the creation of culturally relevant PPC standards and quality indicators for the region.

Main Methods:

  • Literature review on existing quality indicators for pediatric palliative care.
  • Analysis of sociocultural factors influencing PPC in Latin America.
  • Synthesis of findings to propose a framework for regional quality indicators.

Main Results:

  • Current quality indicators do not adequately address the specific needs and context of Latin America.
  • Sociocultural characteristics significantly impact the perception, acceptance, and implementation of PPC services in the region.
  • No defined set of quality indicators currently exists for Latin American PPC.

Conclusions:

  • There is an urgent need for region-specific quality indicators for pediatric palliative care in Latin America.
  • Developing these indicators must consider unique sociocultural aspects to ensure effective implementation and improve care for children.
  • This work provides a foundation for establishing culturally sensitive standards of care and quality metrics for PPC in Latin America.

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