Caring for Individuals With Intellectual and Developmental Disabilities in the COVID-19 Crisis

Jessica Solomon Sanders1, Seth Keller1, Bhooma R Aravamuthan1

  • 1Department of Neurology (JSS), Boston Children's Hospital, Harvard Medical School, MA; Neurology Associates of South Jersey (SK), Lumberton, NJ; and Division of Pediatric Neurology (BRA), Department of Neurology, Washington University School of Medicine, St. Louis, MO.

Insights

Individuals with intellectual and developmental disabilities (IDD) face increased risks during the COVID-19 pandemic. This study offers strategies for reducing infection exposure and ensuring continued neurological care and advocacy for this vulnerable population.

Area of Science:

  • Neurology
  • Public Health
  • Disability Studies

Background:

  • Individuals with intellectual and developmental disabilities (IDDs) represent a medically vulnerable patient group.
  • The COVID-19 pandemic poses significant psychosocial and medical risks to individuals with IDDs.
  • Neurologic care for individuals with IDDs requires specific considerations during public health crises.

Purpose of the Study:

  • To outline strategies for minimizing infectious exposures in individuals with IDDs during the COVID-19 pandemic.
  • To ensure the continuity of optimal neurologic care for individuals with IDDs amidst the pandemic.
  • To provide advocacy recommendations for individuals with IDDs facing potential medical resource restrictions.

Main Methods:

  • Review of current public health guidelines and best practices for infection control.
  • Analysis of the specific needs and vulnerabilities of individuals with IDDs in a pandemic context.
  • Development of practical strategies for healthcare providers and caregivers.

Main Results:

  • Identification of key areas for reducing infectious disease transmission in clinical and community settings for individuals with IDDs.
  • Recommendations for adapting neurologic care delivery to maintain patient safety and treatment efficacy.
  • Guidance on advocating for equitable access to medical resources and care.

Conclusions:

  • Proactive implementation of infection control measures is crucial for protecting individuals with IDDs.
  • Sustained and adapted neurologic care is essential for managing the health of this population during the pandemic.
  • Advocacy efforts are necessary to ensure the rights and well-being of individuals with IDDs are upheld.

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