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Ethical Challenges for Pediatric Biobanks

Tamsin E Tarling1, Aaron Goldenberg2, Ashton Ellis1

  • 1Department of Pathology and Laboratory Medicine, University of British Columbia, Vancouver, British Columbia, Canada.

Biopreservation and Biobanking
|April 13, 2021
PubMed

Insights

Pediatric biobanking requires special ethical considerations, including child assent and reconsent at adulthood. This review highlights best practices for ethically managing children

Area of Science:

  • Bioethics
  • Pediatric Research
  • Biobanking

Background:

  • Children's vulnerability necessitates unique ethical considerations in biobanking.
  • Standard adult biobanking practices may not adequately address pediatric-specific issues.

Purpose of the Study:

  • To review ethical challenges unique to pediatric biobanking.
  • To describe best practices for pediatric biobank operations.
  • To share experiences from a pediatric institutional biobank.

Main Methods:

  • Literature review of ethical issues in pediatric biobanking.
  • Analysis of institutional biobank practices.
  • Focus on assent, reconsent, capacity, and genetic result implications.

Main Results:

  • Key ethical issues include assent, reconsent at majority, capacity, and family impact.
  • Best practices involve tailored consent/assent processes.
  • Institutional biobanks can implement specific protocols for pediatric populations.

Conclusions:

  • Ethical pediatric biobanking demands specific protocols beyond adult standards.
  • Implementing robust assent and reconsent procedures is crucial.
  • Addressing the unique vulnerabilities of children ensures ethical research integrity.

Keywords:
assentcapacity to consentconsentethicspediatric biobankingreconsent

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