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Published on: January 18, 2018
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Patient-Reported Experience Measures in Stroke Care: A Systematic Review
Cosette Cornelis1, Sanne J den Hartog2,3,4, Carla M Bastemeijer4
1Department of Neurology, Amsterdam University Medical Center, the Netherlands (C.C., P.J.N., R.M.V.d.B.-V.).
Stroke
|May 10, 2021
Summary
Patient-reported experience measures (PREMs) for stroke care are limited. While one stroke-specific PREM shows promise, its practicality is hindered, necessitating new tools for better patient-centered care.
Area of Science:
- Health Services Research
- Patient Experience Measurement
- Stroke Rehabilitation
Background:
- Patient-reported experience measures (PREMs) are crucial for assessing healthcare quality from the patient's perspective.
- Stroke care quality improvement relies on validated instruments to capture patient experiences.
Purpose of the Study:
- To systematically identify all reported PREMs for stroke care.
- To critically evaluate the psychometric properties of PREMs validated for stroke patients.
Main Methods:
- Systematic literature search for studies on PREM development, validation, or utilization in adult stroke patients.
- Application of Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria for psychometric appraisal.
Main Results:
- 13 PREMs were identified across 18 studies.
- The stroke-specific Consumer Quality Index: Cerebrovascular Accident (CQI-CA) demonstrated favorable psychometrics but faced implementation challenges due to length and language.
- Riksstroke was appraised as doubtful, and 11 generic PREMs showed conflicting or unknown psychometric performance in stroke populations.
Conclusions:
- Existing PREMs for stroke care have limitations, with CQI-CA being the most promising but not fully practical.
- There is a significant need for the development of new, stroke-specific PREMs.
- Improved PREMs are essential for enhancing quality improvement initiatives and advancing patient-centered stroke care.
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