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Developing an adolescent and adult Fontan Management Programme

Adam M Lubert1,2, Tarek Alsaied1, Andrew T Trout3

  • 1Cincinnati Children's Hospital Heart Institute, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.

Cardiology in the Young
|May 10, 2021
PubMed

Insights

Adults with single-ventricle congenital heart disease (CHD) need specialized care after the Fontan procedure. A multidisciplinary Fontan Management Programme aims to detect and treat complications early for improved long-term outcomes.

Area of Science:

  • Cardiology
  • Pediatric Cardiology
  • Adult Congenital Heart Disease

Background:

  • Single-ventricle congenital heart disease (CHD) necessitates palliative surgeries, often culminating in the Fontan procedure.
  • While life-extending, Fontan circulation poses risks for cardiac complications and multi-organ dysfunction in adulthood.
  • Traditional cardiac-focused care models are evolving to address the complex, multi-system needs of Fontan patients.

Purpose of the Study:

  • To describe the development and goals of a multidisciplinary Fontan Management Programme.
  • To emphasize the shift towards comprehensive, multi-organ system monitoring for early risk identification in Fontan patients.
  • To establish a cohesive network of subspecialists for expert Fontan patient care.

Main Methods:

  • Development of a multidisciplinary care model integrating various medical subspecialties.
  • Implementation of screening protocols to monitor multiple organ systems.
  • Focus on early detection and proactive treatment of potential complications.

Main Results:

  • The programme facilitates earlier identification of patients at risk for adverse outcomes.
  • Enhanced collaboration among diverse medical subspecialists provides comprehensive care.
  • The multidisciplinary approach aims to mitigate long-term complications associated with Fontan circulation.

Conclusions:

  • A multidisciplinary Fontan Management Programme is crucial for addressing the complex needs of adults with Fontan circulation.
  • Proactive, multi-system monitoring and early intervention can improve patient outcomes.
  • Integrated care models are essential for managing long-term sequelae of single-ventricle CHD.

Keywords:
Fontanadult congenital heart diseasemultidisciplinary clinic

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