A roadmap: Social distancing physical activity data collection to protect those with intellectual disabilities

Area of Science:

• Health sciences
• Disability studies
• Public health

Background:

• The COVID-19 pandemic necessitated significant changes in research methodologies.
• Maintaining objective physical activity data collection for individuals with intellectual disabilities posed unique challenges due to social distancing mandates.

Purpose of the Study:

• To outline the adaptation process for research methods involving individuals with intellectual disabilities during the COVID-19 pandemic.
• To ensure the continued collection of objective physical activity metrics while adhering to social distancing guidelines.

Main Methods:

• Implemented electronic consent and assent forms for remote participant engagement.
• Utilized electronic surveys for data collection.
• Mailed accelerometers with instructions for at-home objective physical activity monitoring.

Main Results:

• The adapted research methods were successfully implemented without risk of virus transmission.
• The modifications did not impose an undue burden on research staff, participants, or caregivers.
• Recruitment may have been impacted by COVID-19 related quarantine measures, potentially introducing bias.

Conclusions:

• Objective physical activity data collection protocols can be effectively modified to protect individuals with intellectual disabilities and research personnel during public health crises.
• Future research may benefit from enhanced participant incentives and the development of in-home participation strategies.