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Longitudinal family caregiving experiences in heart failure: Secondary qualitative analysis of interviews
Soyoung Choi1, Lisa Kitko2, Judith Hupcey2
1College of Nursing, Yonsei University, 604 College of Nursing Building, 50-1 Yonsei-ro, Seodaemun-gu, Seoul 03722, South Korea.
Background:
Considering the potential impacts of family caregivers on heart failure management and the costs of healthcare, health professionals need to pay attention to the challenges faced by family caregivers.
Objective:
This study longitudinally explored the caregiving experiences of family caregivers of persons with heart failure.
Methods:
Serial interview scripts collected from 53 family caregivers were analyzed using a content analysis method.
Results:
The following themes emerged: (1) accumulating knowledge and skills for caregiving; (2) losing a sense of control; (3) balancing an unstable life; (4) constructing illness memory; (5) centering the patient in daily life; (6) accepting the loss of a family member; (7) coping with grief by drawing on social support; (8) facing financial responsibility; and (9) rethinking hospice care.
Conclusion:
Family caregivers experience concern about unpredictable caregiving years, disease's fluctuating symptoms and poor prognosis. More educational opportunities, financial counseling programs, and palliative care consultations should be provided.
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