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Patient Engagement Initiatives in Clinical Trials: Recent Trends and Implications
Shalome Sine1,2, Annick de Bruin3, Kenneth Getz1,2
1Center for Information and Study on Clinical Research Participation, One Liberty Square, Suite 1100, Boston, MA, 02109, USA.
Convenience-enhancing solutions in clinical trials are increasingly used and improve patient satisfaction and retention. These tools are particularly beneficial for engaging under-represented populations.
Area of Science:
- Clinical Research
- Patient Engagement Strategies
Background:
- Increasing complexity in clinical trial protocols and narrowing patient populations pose recruitment and retention challenges.
- Patient engagement and retention are critical for trial success.
- Technological and supportive solutions are being developed to address these challenges.
Purpose of the Study:
- To survey clinical trial participants regarding the prevalence and impact of convenience-enhancing solutions.
- To examine patient perceptions of these solutions and changes since 2017.
Main Methods:
- Analysis of 12,451 responses from a global online survey conducted in 2019.
- Focus on respondents who utilized convenience-enhancing solutions during their trial participation.
Main Results:
- The prevalence of convenience-enhancing solutions is rising.
- Use of these solutions correlates with higher clinical trial satisfaction ratings.
- Use of these solutions correlates with higher ratings for care and attention received.
Conclusions:
- Reducing participation barriers and improving retention require diverse strategies.
- Convenience-enhancing solutions effectively reduce barriers to clinical trial participation.
- These solutions show popularity among under-represented populations, offering opportunities for increased engagement.
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