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Area of Science:

  • Psychology
  • Grief Studies
  • Pediatric Health

Background:

  • Prolonged Grief Disorder (PGD) is characterized by role confusion in parents following infant loss.
  • Sudden Infant Death Syndrome (SIDS) represents a significant cause of infant mortality, leading to profound parental grief.

Purpose of the Study:

  • To examine the evolution of the parental role in the context of bereavement after SIDS.
  • To understand how parents re-conceptualize their responsibilities and the meaning of their role post-loss.

Main Methods:

  • Qualitative study involving semi-structured interviews with 31 parents.
  • Interviews conducted 2-5 years after the loss of their infant to SIDS.
  • Thematic analysis used to identify patterns in parental role disruption and re-imagining.

Main Results:

  • Significant disruption of the parental role was identified.
  • Parents re-imagined responsibilities related to their child's physical security, emotional security, and the child's meaning.
  • Parental tasks shifted from concrete to representational and self-generated, emphasizing the child's enduring place.

Conclusions:

  • Role confusion is a key symptom in parents experiencing prolonged grief after SIDS.
  • Bereaved parents continue to assert their child's meaningful place in the world and family.
  • Understanding these evolving parental roles is crucial for supporting families affected by SIDS.