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A patient-centered gout information value chain: a scoping review
Maranda J Russell1, Sujin Kim2, Aleksander Lenert3
1Department of Communication, College of Communication and Information & Division of Biomedical Informatics, College of Medicine, University of Kentucky, USA.
Patient Education and Counseling
|June 14, 2021
Summary
Gout patients receive instructions but lack understanding of why treatments are important or how to perform them. This research highlights a need for better patient education materials.
Area of Science:
- Rheumatology and Health Informatics
- Value Chain Analysis in Healthcare
Background:
- Gout patient education is crucial for treatment adherence and management.
- Existing research on health information needs for gout patients requires comprehensive analysis.
Purpose of the Study:
- To analyze the scope of research on gout patient health information requirements.
- To apply value chain analysis to understand information gaps in gout care.
Main Methods:
- Systematic literature search across six electronic databases and grey literature.
- Inclusion of 33 English-language studies with no date restrictions.
- Categorization of studies based on the care delivery value chain stages.
Main Results:
- Research spanned various information phenotypes: pathophysiology, medical treatment, and nonpharmaceutical interventions.
- A significant focus was on long-term treatment adherence and patient education.
- Studies were distributed across screening, diagnosing, preparing, intervening, recovering, and monitoring stages.
Conclusions:
- Gout patients are often informed about 'what' to do but not 'why' or 'how' regarding interventions.
- A gap exists in providing adequate rationale and practical guidance in patient education.
- This review serves as a basis for developing improved, personalized gout patient education.
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