Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework.

Area of Science:

• Health Policy
• Health Informatics
• Data Management

Background:

• Facilitating health data access is a global health policy priority.
• Effective data infrastructure and societal preference alignment are crucial for progress.
• Switzerland faces challenges in improving its health data framework.

Purpose of the Study:

• To analyze stakeholder recommendations for enhancing Switzerland's health data framework.
• To identify key areas for improvement in health data accessibility and management.

Main Methods:

• Qualitative study involving 48 expert stakeholders in Switzerland.
• Thematic analysis applied to categorize stakeholder recommendations.
• Focus on experts working with health databases.

Main Results:

• Stakeholders called for a national health data strategy, improved communication, and respect for societal preferences.
• Recommendations include establishing a national data center, enhancing IT solutions, and implementing a Unique Identifier.
• Harmonizing data access procedures and clarifying data protection/consent rules were also recommended.

Conclusions:

• Identified improvements must align with existing policies, infrastructure, and ethical/legal constraints.
• A phased implementation of recommended solutions is advised for Switzerland.
• Lessons learned can guide other nations aiming to improve health data access for public health and research.