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Updated: Nov 1, 2025
04:36
Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum
Published on: August 5, 2020
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Developing a death literacy index.
Rosemary Leonard1, Kerrie Noonan1, Debbie Horsfall1
1School of Social Sciences, Western Sydney University, Sydney, Australia.
Death Studies
|June 21, 2021
Summary
This study developed a reliable 29-item Death Literacy Index to measure an individual's capacity for end-of-life care. This tool can assess interventions for improving death literacy in communities and societies.
Area of Science:
- Palliative Care
- Public Health
- Psychometrics
Background:
- End-of-life care experiences can foster death literacy.
- A comprehensive measure for death literacy is needed to evaluate interventions.
- Assessing death literacy is crucial for individuals, communities, and societal well-being.
Purpose of the Study:
- To develop and validate a comprehensive and usable Death Literacy Index.
- To create a psychometrically sound tool for measuring death literacy.
- To provide a reliable instrument for assessing interventions related to death literacy.
Main Methods:
- Mixed methods approach integrating personal narratives and expert input.
- Development of the Death Literacy Index.
- Refinement and validation using exploratory and confirmatory factor analysis and structural equation modeling on a sample of 1330 Australians.
Main Results:
- A 29-item Death Literacy Index was developed.
- The index demonstrated reliability and construct validity.
- The measure is suitable for assessing death literacy in diverse populations.
Conclusions:
- The Death Literacy Index is a reliable and valid measure.
- This tool has the potential to assess interventions aimed at improving death literacy.
- Further research is recommended to establish predictive validity.
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