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Understanding the Pain Management Landscape Within the US Bleeding Disorder Community: A Multi-Center Survey
Michelle Witkop1, Maria Santaella1, Cynthia D Nichols2
1National Hemophilia Foundation, New York, New York, USA.
Pain Medicine (Malden, Mass.)
|June 29, 2021
Summary
Pain management in persons with hemophilia (PWH) shows strengths in non-opioid use and patient follow-up. Opportunities exist to enhance screening, monitoring, and discontinuation plans for PWH.
Area of Science:
- Medical research
- Pain management
- Hematology
Background:
- Pain is a common complication for persons with hemophilia (PWH) due to bleeding.
- Current practice patterns for pain management in Hemophilia Treatment Centers (HTCs) are not well understood.
Purpose of the Study:
- To describe pain management practices among HTC providers.
- To identify gaps and alignment with CDC pain guidelines.
- To explore educational needs for pain management in PWH.
Main Methods:
- A descriptive online survey was administered to multidisciplinary HTC providers.
- Participants included physicians, nurse practitioners, nurses, physical therapists, and social workers.
- The survey focused on pain management practices within CDC guidelines.
Main Results:
- HTCs demonstrate strengths in pain management, including prioritizing non-pharmacological options and non-opioid medications.
- Providers show dedication to effective pain management, follow-up care, and patient counseling on risks.
- Cohesiveness exists among HTC providers regarding pain management approaches.
Conclusions:
- Opportunities exist to improve pain management by consistently using screening tools, opioid agreements, and discontinuation plans.
- Enhanced education for HTC team members can optimize pain management for individuals with bleeding disorders.
- Standardizing certain practices can further improve care for PWH.
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