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Parental Engagement of a Prototype Electronic Diary in an Ambulatory Setting Following Adenotonsillectomy in
Tobial Mchugh1, Karen A Brown2, Sam J Daniel1
1Department of Otorhinolaryngology, McGill University Health Center, Montreal Children's Hospital, Montréal, QC H4H 3J1, Canada.
Insights
An electronic pain diary (e-diary) showed high parental response and compliance for children recovering from adenotonsillectomy. This digital tool, similar to paper diaries, aids real-time patient monitoring post-discharge.
Area of Science:
- Pediatric Surgery
- Health Informatics
- Pain Management
Background:
- Adenotonsillectomy is a common outpatient procedure for children.
- Parental management of post-operative pain is crucial in the ambulatory setting.
- A pain diary can aid parents in tracking and managing their child's pain effectively.
Purpose of the Study:
- To assess parental response and compliance with a prototype electronic pain diary (e-diary) with cloud storage.
- To compare the e-diary's performance against a traditional paper diary (p-diary).
- To evaluate the usability of digital health tools for post-operative pain management in pediatric patients.
Main Methods:
- A comparative study involving children aged 2-12 years undergoing adenotonsillectomy.
- Parents chose between an e-diary or a p-diary for recording pain scores twice daily for two weeks.
- Data collection included response rates, diary completion rates, and method of data submission (mail vs. text).
Main Results:
- The e-diary achieved an 80% response rate, comparable to the p-diary (77% when including texted data).
- Data completeness for both e-diaries and p-diaries was similar, with no significant difference in complete or incomplete entries.
- Most parents preferred text message communication (98%) for study contact.
Conclusions:
- Smartphone-based e-diaries with cloud storage are a viable tool for real-time post-operative monitoring in pediatric patients.
- Digital health applications can effectively meet the needs of both families and healthcare providers for managing ambulatory surgical recovery.
- The study supports the integration of technology into pediatric post-operative care to improve pain management and patient follow-up.
Abstract:
Adenotonsillectomy is performed in children on an outpatient basis, and pain is managed by parents. A pain diary would facilitate pain management in the ambulatory setting. Our objective was to evaluate the parental response rate and the compliance of a prototype electronic pain diary (e-diary) with cloud storage in children aged 2-12 years recovering from adenotonsillectomy and to compare the e-diary with a paper diary (p-diary). Parents recorded pain scores twice daily in a pain diary for 2 weeks post-operation. Parents were given the choice of an e-diary or p-diary with picture message. A total of 208 patients were recruited, of which 35 parents (16.8%) chose the e-diary. Most parents (98%) chose to be contacted by text message. Eighty-one families (47%) returned p-diaries to us by mail. However, the response rate increased to 77% and was similar to that of the e-diary (80%) when we included data texted to the research phone from 53 families. The proportion of diaries with Complete (e-diary:0.37 vs. p-diary:0.4) and Incomplete (e-diary:0.43 vs. p-diary:0.38) data entries were similar. E-diaries provide a means to follow patients in real time after discharge. Our findings suggest that a smartphone-based medical health application coupled with a cloud would meet the needs of families and health care providers alike.
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