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Published on: August 17, 2022
Genetic discrimination: introducing the Asian perspective to the debate
Hannah Kim1, Calvin W L Ho2, Chih-Hsing Ho3
1Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.
Abstract:
Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
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