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Genetic discrimination: introducing the Asian perspective to the debate
Hannah Kim1, Calvin W L Ho2, Chih-Hsing Ho3
1Asian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.
NPJ Genomic Medicine
|July 2, 2021
Summary
Seven Asian nations are analyzed for genetic discrimination (GD) policies. Most lack specific laws, focusing narrowly on employment and insurance, hindering genomic progress.
Area of Science:
- Genomic policy
- Bioethics
- Asian legal frameworks
Background:
- Genomic advancements present opportunities and risks.
- Genetic discrimination (GD) is a growing concern.
- Asian jurisdictions vary in addressing GD.
Purpose of the Study:
- To analyze legislation, policies, and practices regarding GD in seven Asian jurisdictions.
- To identify gaps in current regulatory approaches to GD.
- To recommend a coordinated mechanism for addressing GD in Asia.
Main Methods:
- Comparative legal analysis of statutes and policies.
- Review of relevant governmental and institutional practices.
- Examination of case law and policy documents.
Main Results:
- Limited specific legislation exists to prevent GD across most examined jurisdictions.
- Policy discussions primarily focus on narrow areas like employment and insurance.
- South Korea is an exception with specific legislative measures.
Conclusions:
- Current approaches to GD in Asia are insufficient to harness genomic potential.
- A coordinated regulatory and governance mechanism is needed.
- Proactive engagement with GD challenges is crucial for Asia's scientific advancement.
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