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Systematic review: Psychosocial factors of resilience in young people with inflammatory bowel disease
Jacob Tempchin1, Barbara Storch2, Laura C Reigada3
1Quantitative Methods in the Social Sciences, The Graduate Center, City University of New York, New York, NY, USA.
Insights
Resilience in pediatric Inflammatory Bowel Disease (IBD) is understudied. Factors like positive body image and social functioning may promote resilience in young patients with IBD.
Area of Science:
- Pediatric gastroenterology
- Psychosocial health
- Chronic disease management
Background:
- Inflammatory Bowel Disease (IBD) impacts a growing number of children and adolescents.
- Research has focused on poor outcomes, neglecting factors promoting resilience in pediatric IBD.
- This review synthesizes psychosocial factors contributing to resilience in young IBD patients.
Purpose of the Study:
- To review existing literature on psychosocial factors associated with resilience in pediatric Inflammatory Bowel Disease.
- To identify potential areas for future research and intervention.
Main Methods:
- Systematic searches of major biomedical and psychological databases (MEDLINE, Embase, PsychInfo, CINAHL).
- Inclusion of quantitative, English-language studies focusing on pediatric IBD and resilience.
- Narrative synthesis of 17 included studies, categorizing factors into individual, social, and family domains.
Main Results:
- 17 studies were included, identifying 19 psychosocial factors linked to resilience indicators.
- Preliminary findings suggest positive body image, mindfulness, and social functioning are associated with resilience.
- Factors were analyzed across individual, social, and family domains.
Conclusions:
- Resilience in pediatric IBD remains an under-researched area.
- Few studies have explicitly aimed to understand resilience or used validated measures.
- Prospective, theory-driven research is crucial to identify mechanisms fostering resilience in pediatric IBD.
Objective:
Inflammatory bowel disease (IBD) affects a growing number of young people. While factors associated with poor disease experience in pediatric IBD have garnered much attention in the literature, less attention has focused on the factors associated with the resilient outcomes seen in the majority of young people with IBD. This review seeks to contribute to the literature by synthesizing research on the psychosocial factors that promote resilience in pediatric IBD and by offering future directions for the field.
Methods:
Systematic searches of the MEDLINE, Embase, PsychInfo, and CINAHL databases were performed for quantitative English-language studies with keywords for IBD, resilience or factors of resilience, and pediatric populations, with no date restrictions. Reference lists of all included articles were searched. Quality assessments were performed using an NIH tool.
Results:
Of 3315 articles identified, 17 were included. Studies were heterogeneous, with 19 psychosocial factors identified and analyzed for associations with over two dozen indicators of resilience. A narrative synthesis of included studies was performed. Study details were organized into three domains-individual, social, and family. Preliminary data indicate that resilience in pediatric IBD may be associated with positive body image, increased mindfulness, and improved social functioning, among other potential factors.
Conclusions:
Resilience in pediatric IBD is largely unstudied. Only one study pursued an understanding of resilience as an aim, and no studies incorporated validated measures of resilience. Future prospective, theory-driven research is needed to elucidate the network of factors and mechanisms that can foster resilience in children and adolescents with IBD.
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