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Emotional and Behavioral Problems in Children With a Cleft Lip With or Without Palate or an Infantile Hemangioma
Marije van Dalen1, Mireille M Hermans2, Willem H Leemreis1
1Department of Child and Adolescent Psychiatry/Psychology, Erasmus MC Sophia Children's Hospital, University Medical Center Rotterdam, the Netherlands.
Insights
Parents reported fewer emotional and behavioral problems in children with cleft lip (CL ± P) or infantile hemangioma (IH) than expected. Condition visibility did not impact problems, but parental affect was linked to internalizing issues.
Area of Science:
- Pediatric Psychology
- Developmental Psychology
- Medical Sociology
Background:
- Children with visible differences, such as cleft lip (CL ± P) or infantile hemangioma (IH), may face emotional and behavioral challenges.
- Understanding these challenges is crucial for providing appropriate support.
Purpose of the Study:
- To investigate emotional and behavioral problems in children with CL ± P or IH.
- To examine the influence of condition visibility, related issues, and parental affect on these problems.
Main Methods:
- Cross-sectional study conducted at a Dutch academic medical hospital.
- 309 parents of children aged 1.5–12 years with CL ± P or IH completed questionnaires.
- Parental reports on child emotional and behavioral problems were compared to normative data.
Main Results:
- Parents reported fewer child problems than normative data, mainly related to learning difficulties.
- Condition visibility did not significantly influence reported problems.
- Parental negative affect correlated with child internalizing problems.
Conclusions:
- Reported child problems were lower than expected, contradicting previous research.
- Potential explanations include protective parenting, parental response shifts, or delayed problem onset.
- Further research is needed to understand these discrepancies.
Objective:
Life can be challenging for children with a visible difference due to a medical condition, and they might be at risk for emotional and behavioral problems. This study examines emotional and behavioral problems in children with a cleft lip with or without palate (CL ± P) or an infantile hemangioma (IH) in relation to the visibility of the condition, the presence of additional condition-related problems, and parental affect.
Setting:
This cross-sectional study took place in an academic medical hospital in the Erasmus MC Sophia Children's Hospital, the Netherlands.
Participants:
A total of 309 parents (mean age = 40.34, 44.00% male) of 182 children with CL ± P and 48 parents (mean age = 39.21, 37.50% male) of 33 children with an IH completed questionnaires. Children were 1.5 to 12 years old.
Results:
Parents reported fewer child emotional and behavioral problems compared to normative data. Problems reported were mainly related to learning difficulties and parent gender, while visibility of the condition had no significant influence. Parental negative affect was related to child internalizing problems. Parental positive affect was not related to any of the outcome measures.
Conclusions:
Parents reported fewer problems for their children compared to normative data. This is inconsistent with previous research, showing similar or worse scores for these children compared to peers. Our findings may be explained by a protective parenting style, a response shift in parents, or problems developing at a later point in life.
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