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The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs
Marion Wilkens1, Michael Bartlett2, Frank Willersinn3
1Alpha1 Deutschland e.V, Gernsheim, Germany.
Abstract:
Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s.
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