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Validation of the Pediatric Quality of Life Inventory™, Neuromuscular Module, version 3.0 in Spanish for Argentina
Julieta Mozzoni1,2, Soledad Gómez3,2, M Soledad Monges2,4
1Servicio de Kinesiología, Hospital de Pediatría S.A.M.I.C. "Prof. Dr. Juan P. Garrahan", Ciudad Autónoma de Buenos Aires, Argentina. Jmozzoni@garrahan.gov.ar.
Insights
The Spanish version of the Pediatric Quality of Life Inventory™ (PedsQL™ 3.0) Neuromuscular Module is a valid tool for assessing health-related quality of life in children with neuromuscular diseases in Argentina.
Area of Science:
- Pediatric Health
- Quality of Life Measurement
- Neuromuscular Diseases
Background:
- The Pediatric Quality of Life Inventory™ (PedsQL™) is a widely used tool for assessing health-related quality of life (HRQoL) in children.
- A specific module for neuromuscular diseases is available, but its psychometric properties in Spanish for the Argentinian population needed validation.
Purpose of the Study:
- To assess the psychometric properties of the PedsQL™ 3.0 Neuromuscular Module, Spanish version, for children aged 2-18 years with neuromuscular disease in Argentina.
- To determine the feasibility, reliability, and validity of the questionnaire in this specific population.
Main Methods:
- An observational, analytical, prospective validation study was conducted.
- The study included 185 children with neuromuscular disease and their parents.
- The PedsQL™ 3.0 Neuromuscular Module in Spanish was administered, with a retest 10-15 days later for stable patients.
Main Results:
- The questionnaire demonstrated good feasibility, with content easily understood by participants.
- Acceptable reliability was found, with internal consistency of 0.82 (children) and 0.87 (parents).
- Retest reliability was also good, with intraclass correlation coefficients of 0.70 (children) and 0.82 (parents). Construct validity was supported, with 72.7% of hypotheses confirmed.
Conclusions:
- The Spanish version of the PedsQL™ 3.0 Neuromuscular Module is a valid and reliable instrument for assessing HRQoL in Argentinian children with neuromuscular diseases.
- The validated questionnaire can be used by clinicians and researchers to evaluate the impact of neuromuscular conditions on children's quality of life.
Objective:
To assess the psychometric properties of the Pediatric Quality of Life Inventory™ (PedsQL™ 3.0), Neuromuscular Module, version in Spanish for Argentina, for children aged 2-18 years with neuromuscular disease.
Population And Methods:
Observational, analytical, prospective validation study conducted in Hospital Garrahan between March 19th, 2019 and March 9th, 2020. The retest questionnaire was administered 10-15 days later to validate it among patients who reported a stable condition.
Results:
A total of 185 children and their parents participated. In terms of the questionnaire's feasibility, its content was easily understood by participants. Its reliability was acceptable, with an internal consistency of 0.82 among children and 0.87 among parents and a retest intraclass correlation coefficient of 0.70 among children and 0.82 among parents. In relation to the construct validity, 8 of the 11 hypotheses established (72.7 %) were confirmed.
Conclusion:
The questionnaire's psychometric properties were validated.
