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Illuminating and mitigating the evolving impacts of COVID-19 on ethnocultural communities: a participatory action
Denise Campbell-Scherer1, Yvonne Chiu2, Nicole Naadu Ofosu2
1Office of Lifelong Learning & the Physician Learning Program, Faculty of Medicine and Dentistry (Campbell-Scherer, Hunter, Luig), University of Alberta; Department of Family Medicine, Faculty of Medicine and Dentistry (Campbell-Scherer, Ofosu, Jabbour), University of Alberta; Multicultural Health Brokers Cooperative (Chiu, Mahdi, Gayawira, Awasis, Olokude, Goa, Syed, Sillito, Yip, Belle, Akot, Nutter, Farhat, Wang, Jalal, Khalif, Chapagain, Fernandez, Azarcon, Hama); University of Alberta Medical School, Faculty of Medicine and Dentistry (Farooq); Alberta Diabetes Institute (Campbell-Scherer), University of Alberta, Edmonton, Alta. dlcampbe@ualberta.ca.
Background:
The COVID-19 pandemic has exacerbated disparities in poverty and illness for people in vulnerable circumstances in ethnocultural communities. We sought to understand the evolving impacts of COVID-19 on ethnocultural communities to inform intersectoral advocacy and community action.
Methods:
The Illuminate Project used participatory action research, with cultural health brokers as peer researchers, from Sept. 21 to Dec. 31, 2020, in Edmonton, Alberta. Twenty-one peer researchers collected narratives from members of ethnocultural communities and self-interpreted them as they entered the narratives into the SenseMaker platform, a mixed-method data collection tool. The entire research team analyzed real-time, aggregate, quantitative and qualitative data to identify emerging thematic domains, then visualized these domains with social network analysis.
Results:
Brokers serving diverse communities collected 773 narratives. Identified domains illuminate the evolving and entangled impacts of COVID-19 including the following: COVID-19 prevention and management; care of acute, chronic and serious illnesses other than COVID-19; maternal care; mental health and triggers of past trauma; financial insecurity; impact on children and youth and seniors; and legal concerns. We identified that community social capital and cultural brokering are key assets that facilitate access to formal health and social system supports.
Interpretation:
The Illuminate Project has illustrated the entangled, systemic issues that result in poor health among vulnerable members of ethnocultural communities, and the exacerbating effects of COVID-19, which also increased barriers to mitigation. Cultural brokering and community social capital are key supports for people during the COVID-19 pandemic. These findings can inform policy to reduce harm and support community resiliency.
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