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Stakeholder Voices: Interpreting Caregiving Research and Designing Next Steps.

Heather M Young, Tina Kilaberia, Robin Whitney

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    Engaging diverse family caregivers in research and policy development is crucial. Understanding their unique needs and experiences ensures effective support and tailored solutions for older adults.

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    Area of Science:

    • Gerontology
    • Public Health
    • Health Services Research

    Background:

    • Stakeholder engagement is vital for translating research into actionable policy and practice.
    • Organizations focused on older adults and caregivers convened to address caregiving needs.
    • Effective dissemination requires understanding diverse caregiver populations.

    Purpose of the Study:

    • To generate an action agenda for stakeholders involved with family caregivers.
    • To highlight the diversity of caregiving experiences and needs.
    • To emphasize centering caregivers in program, research, and policy design.

    Main Methods:

    • Convened over 120 participants, including caregivers, advocates, and researchers.
    • Conducted three virtual sessions to foster discussion and collaboration.
    • Focused on developing a shared action agenda for family caregiver support.

    Main Results:

    • An action agenda was generated by diverse stakeholders.
    • Recognized common caregiver experiences alongside culturally shaped meanings.
    • Highlighted the impact of intersectionality (age, race, gender, etc.) on caregiving.

    Conclusions:

    • Caregiver experiences are diverse and influenced by cultural context and intersectionality.
    • Programs, research, and policy must prioritize understanding unique caregiver needs.
    • Centering the caregiver is essential for developing effective and equitable solutions.