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Author Spotlight: Investigating the Mechanisms and Inducing Models of Polycystic Ovary Syndrome
Published on: July 5, 2024
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A Comprehensive PCOS Research and Guideline Translation Program to Improve Practice
Vijayanand A Ramasamy1, Rhonda M Garad1, Jacqueline A Boyle1
1Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia.
Seminars in Reproductive Medicine
|September 16, 2021
Summary
An international guideline for Polycystic Ovary Syndrome (PCOS) was developed and disseminated globally. This initiative successfully reached millions of women and healthcare providers, significantly improving PCOS knowledge and management worldwide.
Area of Science:
- Endocrinology
- Reproductive Health
- Evidence-Based Medicine
Background:
- Polycystic Ovary Syndrome (PCOS) is a prevalent endocrine disorder affecting 8-13% of reproductive-age women.
- Existing knowledge, practice, and research gaps necessitate effective management strategies.
- International collaboration is crucial for addressing the complexity of PCOS.
Purpose of the Study:
- To describe a research translation program for disseminating the 2018 International Evidence-Based Guideline for PCOS.
- To detail the global uptake and impact of PCOS management resources.
- To highlight strategies for effective guideline dissemination and end-user engagement.
Main Methods:
- Formation of an international research collaboration to develop evidence-based PCOS guidelines.
- Implementation of a research translation program for global dissemination to women and healthcare providers.
- Development of supplementary resources, including the AskPCOS app, for accessible PCOS information.
Main Results:
- The PCOS guideline and resources have achieved significant global reach, with over 75,000 views and 36,000 downloads of the guideline alone.
- The AskPCOS app has garnered nearly 10,000 users, demonstrating high engagement with 23,000+ sessions.
- Resources are utilized internationally, with users from 137 countries, indicating broad accessibility and impact.
Conclusions:
- The research translation program effectively disseminated the PCOS guideline and resources globally.
- Co-design, consumer consultation, and end-user engagement were key to the program's success.
- This initiative represents a significant advancement in international PCOS management and patient empowerment.
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