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Updated: Oct 19, 2025

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The financial burden experienced by families of preterm infants after NICU discharge

Ashwini Lakshmanan1,2,3, Ashley Y Song4, Mandy B Belfort5

  • 1Fetal and Neonatal Medicine Institute, Division of Neonatal Medicine, Children's Hospital Los Angeles, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA. alakshmanan@chla.usc.edu.

Journal of Perinatology : Official Journal of the California Perinatal Association
|September 25, 2021
PubMed

Insights

Families of preterm infants face significant financial worry post-neonatal intensive care unit (NICU) discharge. High out-of-pocket costs and medical equipment use increase this burden, while Supplemental Security Income (SSI) enrollment may alleviate it.

Area of Science:

  • Neonatal care
  • Health economics
  • Family support

Background:

  • Families of preterm infants experience substantial financial strain after neonatal intensive care unit (NICU) discharge.
  • Understanding this financial burden is crucial for developing effective support systems.

Purpose of the Study:

  • To describe the financial burden and worry experienced by families of preterm infants after NICU discharge.
  • To identify modifiable factors associated with financial worry.

Main Methods:

  • A cross-sectional study surveyed 365 parents of preterm infants.
  • Data collected included socio-demographics, Supplemental Security Income (SSI) enrollment, and financial worry.
  • Multivariable logistic regression analyzed associations between financial worry and modifiable factors.

Main Results:

  • 53% of parents reported worry about healthcare costs post-NICU discharge.
  • Increased financial worry was associated with out-of-pocket costs from NICU hospitalization (aOR: 3.51) and durable medical equipment use (aOR: 2.41).
  • Enrollment in SSI was associated with decreased financial worry (aOR: 0.38).

Conclusions:

  • Identified key factors contributing to financial burden after NICU discharge.
  • Findings can inform the development of targeted financial support systems for these families.
  • Further research can leverage these insights to improve post-discharge care and reduce financial distress.
Abstract

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