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A paper Passport tool improved communication in a Down syndrome clinic by involving parents. This multidisciplinary clinic intervention enhanced parent-clinician communication and satisfaction.

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Area of Science:

  • Clinical Medicine
  • Healthcare Management
  • Pediatrics

Background:

  • Multidisciplinary clinics, such as the Massachusetts General Hospital Down Syndrome Program (MGH DSP), offer specialized care for Down syndrome.
  • Intrateam communication was identified as a key area for enhancement within the MGH DSP model.

Purpose of the Study:

  • To develop and evaluate a novel communication intervention to improve intrateam and parent-clinician communication within a multidisciplinary Down syndrome clinic.
  • To assess the impact of the intervention on parent suggestions for communication and overall satisfaction.

Main Methods:

  • A paper-based communication tool, the Passport, was developed for parents to facilitate real-time information exchange between clinical teams evaluating the same patients.
  • Metrics included electronic surveys for parents and clinicians, tracking Passport usage, and analysis using Statistical Process Control charts.

Main Results:

  • Parental suggestions for communication-based interactions significantly improved (from 54% to 17%, P < 0.01).
  • Communication scores between the MGH DSP team and parents were high (86% and 96%, respectively).
  • Overall patient satisfaction remained high (mean score 6.49/7), and clinician communication scores averaged 85/100.

Conclusions:

  • The paper Passport tool successfully integrated parents into real-time intraclinic communication, leading to improved communication suggestions.
  • The intervention demonstrated high performance across key metrics, suggesting its utility for other multidisciplinary clinics with geographically dispersed teams.
  • The Passport tool offers a practical solution for enhancing communication in complex healthcare settings.