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Providing a Framework for Meaningful Patient Involvement in Clinical Practice Guideline Development and
Josefine Björkqvist1, Rachel H Giles2, Philip Cornford3
1Academic Urology Unit, University of Aberdeen, Aberdeen, UK.
European Urology Focus
|October 2, 2021
Summary
The EVOLVE study developed a framework to integrate patient preferences into medical guidelines. This framework guides involving patients at optimal times, enhancing guideline quality and relevance for genitourinary cancers.
Area of Science:
- Urology
- Health Services Research
- Patient Engagement
Background:
- International recognition of patient involvement in guideline development is high.
- A clear methodology for integrating patient preferences and values into guidelines is lacking.
- Identifying optimal stages for patient involvement in guideline production is needed.
Purpose of the Study:
- To design and test a framework for meaningful patient involvement in guideline development for genitourinary cancers.
- To identify and prioritize optimal stages for incorporating patient preferences and values.
- To establish a collaboration between professional societies, researchers, clinicians, and patient organizations.
Main Methods:
- Systematic review and stakeholder interviews to identify stages for patient involvement.
- International Delphi study involving patients and clinicians for prioritization.
- Framework testing within European Association of Urology (EAU) guideline panels.
Main Results:
- A framework for meaningful patient involvement in guideline development and implementation has been developed.
- Optimal stages for considering patient preferences and values were identified and prioritized.
- The EVOLVE framework is designed for use within EAU guideline panels.
Conclusions:
- The EVOLVE framework provides a structured approach for patient involvement in guideline development.
- Implementing the EVOLVE framework can improve the quality and relevance of medical guidelines.
- This study establishes a model for patient engagement in guideline production for genitourinary cancers.
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