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Aligning Family-Clinician Expectations During Pediatric Surgical Informed Consent: Development and Implementation of
Adena Cohen-Bearak1, Elaine C Meyer, Lauren Mednick
1Ms. Cohen-Bearak: Project Manager, Center for Healthcare Organization and Implementation Research, Bedford VA Healthcare System, Bedford, MA. Dr. Meyer: Boston Children's Hospital, Center for Bioethics, and Associate Professor of Psychology, Harvard Medical School, Boston, MA. Dr. Mednick: Clinical Psychologist, Boston Children's Hospital, and Assistant Professor of Psychology, Harvard Medical School, Boston, MA. Dr. Varrin: Clinical Psychologist, Family Support Coordinator, Cotting School, Lexington, MA. Ms. Burgess: AA, Advisor Emeritus-Family Advisory Council, Boston Children's Hospital, Boston, MA. Dr. Kuhlmann: Chair for Pediatrics, Department of Medicine, Faculty of Health, Witten/Herdecke University, Witten, Germany, and Division of Pediatric Infectious Diseases, Dr. von Hauner Children's Hospital, University Hospital, Ludwig-Maximilians-University, Munich, Germany. Dr. Bell: Associate Professor, Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA. Dr. Lillehei: Associate Professor of Surgery, Harvard Medical School; Chair of Surgical Education, Boston Children's Hospital, Boston, MA.
Introduction:
Aligning expectations during the informed consent process before a child's surgery is an important element of good communication that benefits both surgical staff and families. We developed and evaluated a 2-hour pilot interprofessional workshop to improve the communication and relational skills of pediatric surgeons and nurse practitioners.
Methods:
Focus groups with families identified key challenges in the process of informed consent. An interprofessional team, including parents whose children had experienced complex surgeries, developed the workshop collaboratively. A realistic simulation with professional actors portraying parents allowed surgical staff to practice communication skills and receive feedback about the parent perspective. Participants completed a postworkshop evaluation to determine whether the workshop met its objectives and whether they would change practice.
Results:
Five key themes identified for the workshop included customize communication; align expectations; share clinical uncertainty; recognize/attend to emotions; and identify team members. Thirty-five clinicians participated in a workshop, and 89% completed evaluations. Three-quarters reported the learning to be valuable, and 64% were likely to change practice. Eighty-seven percent would recommend the workshop to other colleagues, and 58 to 74% felt more prepared to achieve each of eight specific skills.
Discussion:
An innovative workshop for pediatric surgical practitioners to align family-clinician expectations can help improve clinician communication skills and comfort with informed consent. Keys to workshop development included involving parents to identify themes and participate as workshop co-faculty; enlisting leadership and recruiting surgical champions; and using pre-existing meetings to ease scheduling challenges of busy practitioners. Booster sessions may facilitate the desired cultural changes.
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