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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Developing supportive local communities: Perspectives from people with dementia and caregivers participating in the
Catherine Quinn1,2, Nicola Hart3, Catherine Henderson4
1Associate Professor, Centre for Applied Dementia Studies, Faculty of Health Studies, University of Bradford, Bradford, UK.
Abstract:
Communities play an important role in supporting people living with dementia. The aim of this study was to explore what could be changed in the local community to enable those with dementia to live well. People with dementia and carers taking part in the IDEAL programme responded to open-ended questions. Responses from 1,172 people with dementia and 702 caregivers were analyzed using thematic analysis. Four themes were identified: raising awareness, improving access to support services, providing social events and activities, and supporting people to engage in the community. These highlight the role of individuals, resources and the environment in supporting those with dementia. Longer-term investment in services is needed to underpin dementia-inclusive communities.
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