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Adapting a Patient-Reported Outcome Bookmarking Task to be Accessible to Adults With Cognitive and Language

Matthew L Cohen^1,2, Stacy M Harnish³, Alyssa M Lanzi¹

¹Department of Communication Sciences and Disorders, University of Delaware, Newark.

Journal of Speech, Language, and Hearing Research : JSLHR

|October 26, 2021

Summary

Patient-reported outcome (PRO) bookmarking procedures were adapted for individuals with cognitive and language impairments. These modifications enhanced clarity and accessibility for all participants, improving PRO measure interpretation.

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Area of Science:

Health Psychology
Neuropsychology
Speech-Language Pathology

Background:

Patient-reported outcome (PRO) measures often lack clear clinical interpretation.
The PRO-bookmarking procedure offers a method to enhance PRO measure meaningfulness.
Existing PRO-bookmarking materials may not be accessible to individuals with cognitive and language disorders.

Purpose of the Study:

To iteratively refine PRO-bookmarking task materials and procedures.
To increase the accessibility of PRO-bookmarking for adults with acquired cognitive and language impairments.

Main Methods:

Iterative refinement of PRO-bookmarking materials and procedures.
Conducted multiple focus groups with speech-language pathologists (SLPs), care partners, and individuals with conditions like aphasia, Parkinson's disease, and traumatic brain injury.
Incorporated feedback from diverse stakeholders into four distinct refinement iterations.

Main Results:

PRO-bookmarking materials and procedures were simplified and made more accessible through four iterations.
Enhanced materials featured structured text and graphic supports.
Procedures were reorganized into smaller, graphically displayed tasks.

Conclusions:

Adapted PRO-bookmarking materials and procedures are simpler and more structured.
These adaptations improve accessibility for adults with cognitive and language impairments.
The refined PRO-bookmarking tasks offer increased clarity for all stakeholders.